The impact of HAE is far-reaching for many patients5

In spite of the progress achieved, even patients who report that their hereditary angioedema (HAE) is well-controlled still experience a daily impact, regularly accepting attacks and daily trade-offs.7,8

Many patients fail to report some attacks, as they may consider them relatively mild and have learned to live with them.3,8 While not life-threatening, these attacks still have an impact on daily living.2,5

 

Your patients may:

Restrict their physical activities or otherwise modify their lifestyle1

Try to "work through" attacks, resulting in decreased productivity1

Adjust or miss social activities because of their physical or emotional health5

Feel guilty or like a burden to family members4

Not talk about the day-to-day impact of HAE on their daily living3

HAE Treatment Guidelines outline a primary objective of 
normalizing life as much as possible,
ensuring patients are able to engage in all work, school, family, and leisure activities as desired, without limitation from their hereditary angioedema symptoms.1,20

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Patient voices

“I have to avoid certain activities - like mowing the lawn or carving a pumpkin - to reduce the risk of an attack.”

— Patient living with HAE

“Travel, even for fun, can be a trigger.”

— Patient living with HAE

“I’ve lost friendships because they get frustrated with me canceling.”

— Patient living with HAE

“Living with HAE day to day impacts so much.”

— Patient living with HAE

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Helping your patients speak up

Explore motivational interviewing strategies 

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